Shortly after Aiden & Hannah left for the hospital in Boston, Manish and the twins took a trip to Rochester, NY to visit his parents. This was the twins first trip away from home and they did very well! They thoroughly enjoyed their time with Papa, Grandma, “Oak” (Uncle Sachin) & Aunt Amisha. They have grown so much in the past several weeks and now look like 4-yr olds-such big boys! The pics below are an assortment of the boys playing, at the museum, doing things with family and being silly. All in all, it was a great trip!
Aiden and Hannah are still in Boston. Over the past few weeks, Aiden has had a neural MRI, CT Scan, Gastric Emptying Study, Echocardiogram and various other tests. As always, everything is negative and the CT even shows slight overall improvement (in some aspects) in his lungs from his previous chest CT two years ago. While that is good news and rules out the need for lung biopsies at this point, there has still been no progress in addressing the serious health issues that he is continuing to experience. For the past week and a half, Aiden has been trying several new medications as well as re-trying several drugs that were tried previously, prior to his past couple of surgeries. We will meet with Aiden’s GI doctor this week to come up with a longer-term plan, and also plan to begin weaning the narcotic pain medications this week, which will be challenging, given that he is throwing up so much when the drugs wear off.
Thanks for your continued prayers!
Racing cars on their new racetrack
Having a great time harassing Papa
Grandma watches on
Can’t tell who is having more fun here
Amisha and Evan having breakfast
Oak has fun with the boys
Crushed!
Time to get Amisha
Now they turn on eachother
At the museum
Playing with non-dirty, plastic sand
The butterfly exhibit
As Aiden would say, “sooo beeutyful!”
Uncle Oak, Amisha and Miss O (aka, Sachin’s girlfriend) and the boys
Bears
Brushing a big mouth
It made gushing sounds and scared Evan
Hitting the monsters
Oak plays some games too
Time to….
Remember Slinky?
All aboard
Poor Evan looks so sad
More trains
Time to go shopping
Checkout
Cashier
Don’t overcharge me
What does that spell?
Taxicab
Bill Spiotti cut Papa’s hair, Manish’s hair when he was a little boy and is now cutting the twins hair. Spanning 3 generations.
Grandma reads a goodnight story to the boys