Update on Aiden

After getting some horrible medical care all last week at Children’s Hospital, they finally moved Aiden to the Pediatric ICU and he is getting much better care (finally)! Despite the fact that we requested ICU service on Saturday, they chose to wait and things deteriorated to the point that he HAD to be placed in the ICU on Monday at 3AM.

His lungs are not in very good shape and he relies very heavily on machines to help him breathe. Hopefully, he will strong soon and get rid of the infection he has and start breathing better.

This morning he looked somewhat pale and his body is retaining Carbon Dioxide. Please continue to keep him in your prayers. While everything seems to indicate a viral infection, the doctors simply do not know for sure what the issue is.

We have a great Physician who can heal anything and please pray that He would do so in accordance with His will.

Thanks

Update – January 22, 2008

Last Monday Aiden came home to join his brothers. As you can imagine, with three babies being home, we are a little overwhelmed! We will post a lengthier update and some pictures in a couple of weeks.

Unfortunately, yesterday morning, we had to take Aiden to Children’s Hospital in Dallas, TX. He was running a fever, breathing heavy, was spitting up, coughing quite a bit and there were a host of other concerns. Our pediatrician recommended we take him to the hospital and he was admitted yesterday.

He is currently there and Hannah is with him. Last night was very rough as Aiden was coughing all night and hasn’t eaten much in the last 24 hours. Hannah has had very little sleep herself and I plan on going down there to relieve her so she can come home and rest.

They are not sure what is wrong with Aiden. While it appears to be a viral infection of some kind, it could be a number of things.

Please keep Aiden and Hannah in your prayers and that he has a very speed recovery. We know the Lord will not give us more than we can handle but there is alot to handle right now and we would appreciate your prayers.

Ethan and Evan are doing wonderful! They are both growing so fast it is getting harder and harder to tell them apart.

We will update in the next few days (as time permits).

Happy New Year!

What a busy time this is! Christmas was a great blessing and the boys had a great time. They are now 4 months old (actual age) — their adjusted age would be approx. 7 weeks.

Their personalities are becoming more pronounced and even changing as they continue to grow and develop. Of course, this has led to new nicknames for the boys. Here are some of them:

Ethan: Sweet Pea, Little Bit, Baby Bit, E1, E-bit
Evan: E-monster, E2, Mr. Wonderful, Tonka Truck 😉
Aiden: A-I, the Little Charmer, Little Wonder

We are very excited to report some good news! Aiden is still having difficulty eating, however, they have recently begun to thicken his milk and this has made a significant difference in his ability to eat by mouth. Despite his eating difficulties, he is now up to 7 lbs! Ethan also continues to have some difficulty eating, so please keep both he and Aiden in your prayers.

The doctors have agreed to allow Aiden to come home and see if that will help improve his eating and weight gain (of course they will continue to monitor him closely); right now, it appears that he will
be coming home this weekend, finally completing the trio at home. Please pray that God will give us the wisdom, patience, strength and endurance that we will need over the next several months.

Ethan is sound asleep.

“The Charmer” is ready to come home

Such a cute little “e-bit”

Daddy loves his little “e-monster”

All we need is Aiden!

And what about yours, Mr. Wonderful?

Who do you think opened all the gifts?

Bird’s eye view

Some new friends with the same names

Grandpa and Grandma

Uncle Sachin and Aunt Amisha

Baby Wonderful lets out a yawn

Be nice to your brother!

Aiden on Christmas day

Inside his little boppy

“A-I” loves his mommy

What is Ethan laughing at?

Daddy and E2 love to read together

“Little Bit” is sound asleep

As you can see, the “Little Wonder” looks a lot like “Little Bit”

Merry Christmas!

Sorry for the delay in updating the blog. As you can imagine, we have been soooo busy with the twins at home and Aiden still in the hospital. The boys are getting SO big.

At the top of the page you may have noticed our new temporary header – a Christmas version of 3 peas in a pod. Thanks to some very thoughtful friends at work for the adorable ornament!

Aiden is still having difficulty taking his feedings by mouth — he tries very hard, but is often in pain when he tries to swallow. The doctors have done a swallow study and an upper GI xray, but do not see whatever is causing the problem other than the reflux which was already being treated. They have been making a number of changes, trying everything from new reflux medications to switching to various formulas, etc. Earlier this week, they put him on a new reflux medication and changed him from breast milk to a very broken down form of formula used for babies that have difficulty metabolizing the proteins found in milk. One of the big concerns was his limited weight gain (he would gain weight one night and lose it the next), however, in just the past 3 days Aiden has gained a whopping 11 ozs. He now weighs 6 lbs., 9 ozs.! We hope that he will be able to come home soon.

They also performed a neural MRI to follow up on Aiden’s brain bleed (on the left side of his brain). The MRI shows that it is continuing to resolve, which is good news. However, the MRI did show a very small cystic encephalomalacia (fluid-filled area) in the white matter on the right side of his brain. This had not shown up on previous neural ultrasounds, and the doctors say that it is too early to know what impact it will have. Given how small it is, it may affect Aiden’s motor skills as he gets older or it may not have any impact at all — only time will tell.

Ethan and Evan are doing very well and also getting SO big! Ethan is up to 9 lbs., and (we think) Evan must be around 12 lbs. As you will see from the pictures below, they are not so tiny anymore.

We have some new pics and video below but we are working on some special Christmas pics which we will try to post next week. In the meantime, enjoy the ones below.

A special ornament from some good friends. This gift was “Just Right.”

Ethan is very alert and loves to look around

The “twins” sound asleep in their pack’n play

Sheriff Evan is in town

Poor little Ethan is upset

Aiden in his special little outfit

Close up of Aiden (he loves his pacifier)

Aiden in his little Christmas outfit

With his best friend in his mouth

The bib is bigger than him!

Aiden getting a little bath

What a cute little face!

Dad holds both boys

Evan is enjoying himself

Ethan is done for the night

Aiden has grown so much in just a few days!

So Thankful!

We have so much to be thankful for this year. It has been a long and tiring haul through the NICU these past three months, but God has been so good to us! We particularly appreciate all of your continued prayers for the babies. On Tuesday, Nov. 20th, Aiden had surgery on both hernias. The surgery went very well, and he has been healing well and has not experienced any more episodes or obstructions since. He had to be re-intubated for the surgery and of course was unable to eat for some time before and afterward. Although there was initially some minor difficulty weaning him from the ventilator, he is back on the nasal canula and doing well. He is now back on the South Side of the NICU with the “feeders and growers,” and although the doctors are proceeding very slowly and cautiously, he has re-started taking one feeding a day by mouth. (He must be taking all feedings by mouth before he can come home). Despite all of the difficulties he has had, Aiden continues to grow and is now up to 5 lbs., 4 ozs. We have posted some new photos of him below.

Ethan and Evan are doing very well! As of last week, Ethan is up to 7 lbs., 8 ozs. and Evan is a big boy at 8 lbs., 8 ozs.! Ethan is off oxygen and although he is still on the monitor, we have slowly started to wean some of his medications. Evan had a follow-up eye exam at the end of last week to follow up on a concern of some possible scar tissue that was developing behind his eyes; however, the doctor no longer sees anything and said that everything now looks good! Evan does have some acid reflux, so he has started taking medication to help with that. They both love to “talk” and play and “read” their books.

Please continue to pray for Aiden’s healing and for Ethan and Evan to continue to remain healthy and growing.



The boys are not always this fussy
Ethan is exhausted — being a preemie is hard work!

Ethan trying to hold his bottle

Peace and quiet at last!

Such a cute little “e-monster” (Evan)

Close-up of Ethan

Evan gets really focused when eating

Ethan loves to “talk” with his hands while he is eating

Poor little Aiden is so upset!

Aiden wakes up for a picture

What are you looking at, Aiden?

I knew he would smile sooner or later

What a cute little face

Aiden has such long eyelashes

Does he look more like Ethan or Evan?