The boys turned 1 year old on Saturday!

Hard to believe that it has been a year! We still remember it…

5:00AM – call 911 and talk to dispatch operator over the phone
6:05AM – 2 firetrucks, an ambulance and 6 paramedics standing in our bedroom debating whether we go to the hospital in Grapevine (which was closer) or Dallas (which was better suited in case Hannah delivered)
6:19AM – just before she gets in the ambulance, we agree that I will stay behind, gather her belongings and then to to the hospital (we assumed that she would not be giving birth because just 3 weeks earlier, she had to be taken to the hospital and was put on bed rest and we figured it was the same thing)
7:03AM – I start getting things ready…have breakfast, water the plants in the front yard…normal morning stuff
7:21AM – Hannah calls me and tells me to get down there right away because they are going to deliver
7:22AM – Hannah calls me again and reminds me to bring the camera (now I realize this is for real!)
7:23AM – I wish I had a Nikon D3 because that would be the perfect camera but will have to use my Nikon D2X
7:55AM – almost at the hospital when Hannah calls to tell me they have to start
8:15AM – I arrive and rush in…see Hannah and am updated on everything…I missed the birth by about 10 minutes (don’t worry, next time she has triplets I’ll be there)
9:00AM – call relatives and friends to let them know the good news
12:30PM – after she rests and things settle down, we go to actually see the babies for the first time (Hannah only caught a glimpse of them when they were born)
12:45PM – I see Baby “B” (soon to be Evan) and just stare at him for about 5 minutes…then realize I have 2 more to see!
12:50PM – we see all babies and are in awe!

Here is the post from September 6th, 2007

….fast forward one year…and here we are…amazing…

These balloons scared Evan so much that he cried everytime he saw them

1st Birthday with Winnie the Pooh

Let’s not count out Elmo, Big Bird and Cookie Monster

Aiden ponders what is on his head

Ethan doesn’t seem to care for it (Prince Pea prefers his crown)

Evan was very tired

The cake was delicious…sorry boys, you were too little (and cranky) and missed out

This picture describes the evening…we tried a family shot…tried…

Then attempted one with Grandparents and Aunt Amisha and Uncle Sachin…

The next morning, Evan took a little walk

Ethan did too and was quite tired

Aiden loves to sleep with his littly bunny

Here he is with another favorite toy

Ethan takes a journey through the toy tunnel

Aiden and Hannah finally came back home yesterday afternoon after 3 weeks at Boston Children’s Hospital. Aiden’s g-tube surgery went well on Friday, and although he did have a bad reaction to the anesthesia and a rough couple of days afterwards, he is now recovering and healing well. He continues to vomit multiple times a day, losing good portions of his feeds now that he is again being fed into his stomach. Although we have ruled out a number of possibilities, we still do not have the answers we had hoped to find.

There is a possibility that we may be able to try a special medication for him called Cisapride, which is only available through a limited access program in Boston. It is possible that this medication may help minimize some of his symptoms (we will not know unless we try it for approx. 2 mos.). We will not know if he is approved for it for several weeks, and then we would have to return to Boston to administer it. That is the only option that we have for possible treatment at this point, and of course, there is no guarantee that it will work for him. Please pray that Aiden will be able to keep more of his food down and that the persistent vomiting and increased volume will not cause any major respiratory issues as it has in the past.

We posted several images of Aiden’s journey to Boston as well as some of Ethan and Evan below.

Also, we are actively looking for a new babysitter/mother’s helper now that Dana has gone back to college. Please pray that we will find a good replacement ASAP (they will have big shoes to fill as Dana has been wonderful)!

The resp. therapist and Aiden had a date 30,000 feet in the air

People came to entertain Aiden with their music

Aiden and all his EEG probes (he looks like something from Star Wars)

What a colorful pony tail!

The little Sheik with his turban

Grandma came all the way from NY to play

Grandpa was there too!

Meanwhile, the twins battle over the phone (their favorite toy)

Here comes Evan

He loves to chew on everything

Ethan, what is up there?

And now its time to relax

Oh no, why the crying?

Because he wants to get out of ‘jail’

Evan looks ferocious!

Ethan invades the pantry (he decided it was time for a snack!)

Boo has such big eyes

Ethan is simply adorable…and the shoe is very tasty!

Learning to fetch 🙂

Evan looks pensive

Ethan peruses the local stocks

So happy to hear that Aiden & Mommy are coming home!

Evan is learning to feed himself…sort of

Ethan too…

He is so happy to be back!

Evan curls up on the couch

Dana has been such a wonderful babysitter this summer….we will miss her as she goes back to college

One of Aiden’s many new faces

Such a happy little baby!

Tomorrow (Friday) morning Aiden is scheduled for surgery to have a G-Tube inserted. It is a surgically implemented feeding tube used to provide nutrition into the stomach. We have gone back and forth as to whether or not to do this over the past few days. Per the advice of our pulmonologist and pediatrician, we decided to do it in hopes that it will help Aiden.

Once the G-tube is in place, he will be fed primarily during the night when he is sleeping which will reduce the likelihood of him vomiting. During the day, we will try to feed him by mouth to help him overcome his oral aversion.

This has been a tough decision and there seems to be no right answer. There are risks if we do it and risks if we don’t. Hopefully, removing the tube that is currently in his nose will make things better for him to where he will try eating again.

If the vomiting does not stop, then the next step would be to administer a drug called Cisapride. It is known to be a very effective drug in assisting with gastrointestinal issues. However, due to safety concerns it is not FDA approved and can only be administered one place in the United States: Boston Children’s Hospital. This is because it has been known to be potentially lethal in certain cases and has to be administered in very small doses under the supervision of medical staff. So, if Aiden does not improve within the next few weeks, then there is a good chance we will have to go back to Boston and administer the drug over the course of a week. Even then, there is no guarantee that it will work.

Please continue to keep him in your prayers…